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Two months before the diagnosis, you might notice that your back pains have got worse lately, or that you鈥檙e feeling out of sorts, or that your liver has been paining you. Eventually you鈥檒l be fed up enough to go and see a doctor, who will probably arrange for an x-ray. And when the results come back, she will show you an area of shadow on your lung that she doesn鈥檛 much like the look of, and she鈥檒l ask about asbestos 鈥� then she鈥檒l gently inform you that it could be caused by cancer, but you鈥檒l need to go for a CAT scan to be sure 鈥�

The results are back and it鈥檚 wonderful news. The shadow was caused by pleural plaques, which you discover are a kind of fibrous area of the lung that is partly calcified. And no, they鈥檙e not dangerous; what they are is a sign that you鈥檝e been exposed to a lot of asbestos at some point in your life. Then, after the euphoria has worn off it hits you: you鈥檝e been exposed. What, you wonder, are the chances you鈥檒l develop mesothelioma, the highly aggressive, almost always fatal, lung cancer that is caused by asbestos?

Well, the number of people diagnosed with plaques each year is about 14,000, and the number of new mesothelioma cases is 2,000, so you have something like a one in seven chance. That is a terrible burden to carry, but for the past 20 years there was some small comfort to be had from the government, which operated a compensation scheme. But not any more it doesn鈥檛. In January 2006 the Court of Appeal found that the right should be ended, and in October 2007 the law lords agreed, on the grounds that plaques are symptomless and do not necessarily lead to cancer. Last month, construction union Ucatt launched a campaign to reinstate it.

The campaigners鈥� sense of injustice has been exacerbated by the Scottish government鈥檚 decision to reverse the ruling. Ironically, this comes at a time when asbestos-related disease is rising. The most recent figures from the Health and Safety Executive reveal that 2,037 people died in 2005, compared with 1,531 in 1968. The annual number of mesothelioma deaths in Great Britain is estimated to peak somewhere between current levels and 2,450 deaths in the period 2011 to 2015. The union is also in the middle of its Asbestos Awareness Campaign to alert workers to the danger of the material. It released figures revealing that more people die from asbestosis than are killed on the road; 20 tradesmen are buried every week.

On 20 February, a group of campaigners met justice secretary Jack Straw at the Ministry of Justice to present him with a giant postcard detailing the facts of the situation. While he considers their case, we speak to two of the campaigners who suffer from pleural plaques.

Tony O'Brien, 59, Ucatt convenor for Southwark council and leader of Construction Safety Campaign

As an apprentice carpenter鈥搄oiner, I would cut sheets of asbestos and my face would get covered in white dust. You were told it was okay, but I think there was a conspiracy of silence among the manufacturers. I was diagnosed three years ago.

I鈥檝e known 11 people who鈥檝e died and I鈥檝e got their names listed on my office wall. Every time members come into my office it鈥檚 a warning to them to be aware.

I鈥檝e seen a lot of people living with plaques get suicidal. You work all your life, you put money away and you don鈥檛 get much out of it because there鈥檚 no pension. My brother, an electrician, has also got it. My dad was a carpenter鈥搄oiner and my uncles were building workers 鈥� all of them died before they were 60. It makes me very angry.

My family thinks it鈥檚 terrible. I鈥檝e got a 13 year old, a 23 year old and a 28 year old. I wouldn鈥檛 like to kick the bucket between now and my 13 year old being 20. I鈥檓 tempted to retire early, but I can鈥檛 afford to.

I had the compensation. You get half of it and then if you get mesothelioma you can go for full compensation. I got 拢3,500. One of the most distressing things is the inhuman approach in court to cross-examining sufferers. It鈥檚 just about money.

You need recognition that wrong has been done. I think Jack Straw鈥檚 on the fence. But I鈥檓 pleased he came out to meet us and I hope that indicates he鈥檚 on our side now.

John Scott, 59, regional secretary northern region, Ucatt

When the doctor says the word 鈥渁sbestos鈥�, it puts the fear of God into you. I was diagnosed eight or 10 years ago when I was in hospital for something unconnected.

After that you鈥檝e got the negotiations over compensation. That鈥檚 frustrating, because you鈥檙e sitting with a disease you haven鈥檛 had any control over, you鈥檝e been forced into working with a dangerous material and the people who are responsible are trying to use insurance companies to pay you off with just a couple of thousand pounds.

I had 拢11,000 and that鈥檚 a full and final settlement. But even when you get that compensation, it doesn鈥檛 put a line under it. People like me were telling those companies that the substance was harmful and we were being told by experts that it was okay. I feel bitter towards the companies I worked for.

I like to think I鈥檝e got a positive outlook, but I鈥檓 still affected by it and I know others are affected a damn sight more. Many times in the past 20 years, I鈥檝e picked up the phone and the lad on the other end has been depressed 鈥� and that鈥檚 an understatement 鈥� and he鈥檚 told me he鈥檚 been diagnosed with an asbestos problem. The first thing we do is get him in touch with solicitors, but I find myself counselling these lads. Some keep coming back and it鈥檚 not for advice, more just to talk.

I have two sons in their 30s and I don鈥檛 talk about it with them, although my wife knows. You tend to protect your family from it and try not to give it too much thought, because the more I think, the angrier I get.

The problem with pleural plaques is you just feel like the clock鈥檚 ticking a bit faster.